The Friedreich's Ataxia Research Alliance (FARA)

Team Donovan Triathlon
FARA staff and community will be participating as Team Donovan in the Jarden Triathlon in Rye, NY on International Ataxia Awareness Day. Team Donovan was started on behalf of Donovan Simpson, who was diagnosed with Friedreich’s Ataxia 6 years ago. His parents Norman and Debra along with their friends and family rallied around the cause. They started raising funds for research by having people participate in the Jarden Triathlon on behalf of Donovan to raise funds and awareness for FARA. Since their beginning in 2004 Team Donovan has grown to over 36 participants along with a large FARA crowd cheering them on. The Jarden triathlon is 1-mile swim, followed by a 26-mile bike and finishing with a 6.2- mile run.

International Ataxia Awareness Day 2011

As a part of our Initiative in India, we are conducting an event in Secunderabad, Andhra Pradesh

Place:         Lions Bhavan, near HDFC bank, Paradise, Secunderabad A.P
Time:         6.30 PM to 9.00 P.M,
Date:         25th September, 2011

We encourage you to participate in this year’s activities and make IAAD 2011 the most successful awareness campaign yet!

RSVP
SEEK A MIRACLE-ATAXIA GROUP (SAMAG)
Mob no: 9849852726, 9885199918, 9949019410.
Email: - This email address is being protected from spambots. You need JavaScript enabled to view it.
Address: 5-95/20, Sri Laxmi Nagar Colony, Old Alwal,
Secunderabad, A.P, INDIA, 500 010.
www.ataxia.in

Whitby, Ontario to host 3rd “The Walk to Fight Familial Ataxias” (FA) on September 24, 2011 from 10 a.m. to 1 p.m. Heydenshore Park, 589 Water Street. Richmond, BC to host 1st “The Walk to Fight Familial Ataxia”, Garry Point Park. Participants in attendance, will including about 200 participants from Ontario, BC, USA, Quebec, and the UK.

The goal of the Walk is to raise funds for research on FA and to raise public awareness to FA in Canada.

Dr. Mark Tarnopolsky from McMaster University Medical Centre or Dr. Teesta Soman from Toronto Sick Kids Hospital kindly agreed to give a personal interview and answer questions about FA

Mark Tarnopolsky M.D. PhD. FRCPC
Professor, Department Pediatrics and Medicine,
Division of Neurology McMaster University Medical Centre Department of Pediatrics & Medicine,
Division of Neurology 905-521-2100 Ext. 76593
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

Dr Teesta Soman MBBS, FAAP, MBA
Toronto Sick Kids Hospital
Phone: 416-813-5668 Fax: 416-813-6334
e-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

To learn more about The Walk to Fight Familial Ataxias please visit: www.thewalktofightfa.com or www.lacaf.org to learn more about FA.